Certification for IRB Professionals (CIP) Practice Exam

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What does the Right of Subject Privacy refer to?

The right of individuals to access their own research data.
The right of individuals to be protected against intrusion into their personal lives or affairs.
The right of individuals to receive compensation for their participation.
The right of researchers to collect any data necessary.

The correct answer is: The right of individuals to be protected against intrusion into their personal lives or affairs.

The Right of Subject Privacy pertains to the protection of individuals from unwanted intrusion into their personal lives and affairs. This principle emphasizes the necessity of maintaining confidentiality and respect for individuals’ autonomy and dignity throughout the research process. It is grounded in ethical standards that require researchers to safeguard sensitive information and ensure that participants are free from exposure or harm due to the disclosure of private details. In the context of research, safeguarding privacy also means that personal data should only be collected, stored, and shared with explicit consent from the subjects and for purposes that align with what was communicated to them at the outset of their participation. This right, therefore, creates a framework that helps to build trust between researchers and participants, reinforcing the ethical obligation to treat individuals with respect and careful consideration of their personal boundaries.